A typical day with Hayden Part 1: Supplements

Hayden is on 21 different vitamins, nutrients, anti-fungals, probiotics, and one inhaled corticosteroid.  Some days it is easy to give them to him and others days not so much.  We use a syringe and mix them with various things to try and make them taste better.  Hayden's supplements are all based off of laboratory findings specific for him.  As Hayden's gut continues to heal we will be able to back off on a lot of his supplements.  I look forward to that day!!  I am sure he does too :)  There are certain ones that he will have to be on the rest off his life due to his genetic make-up.   Hayden's supplements cost about $400.00 a month.  So here is Hayden's supplement schedule:

0700 5ml of biotic silver (this is what is killing the yeast and bacterial) mixed with a pinch of organic cranberry juice and diluted with water.  I give a syringe full of the mixture and then an additional syringe full of water.

0730 Hayden gets his probiotics, we call them his friendly fighters.  The probiotics are to restore good bacterial back into his body.  He gets on full capsule of Flora Guard and a half of the pro-dophilus.  I mix with a hint of apple juice and water.

Then sometime in the morning time he gets his "drops".  Hayden actually likes doing these and opens his mouth like a baby bird for me to drop them in.  He gets one drop of vitamin d3, one drop of folinic acid, and a dropper full of b12.

Hayden also take a flovent inhaler as a maintenance medication for his asthma.  He gets one puff and then we brush his teeth.  I really don't like him on an inhaled steroid but feel that is our only option until we get the inflammation in his body under control.  I don't want anymore hospital stays like last spring.

Around noon he gets 5ml of bionic silver again. Given the same way as before breakfast except no probiotics 30 minutes afterwards.

Then between lunch time and dinner he gets the "big" mixture of his supplements.  We mix all of these together and don't add anything to them.  They taste nasty!  We have found it easier on Hayden to just make this straight up and give it to him.  Some are gel capsules that we break apart, some are powders that we use a scoop, some are liquids, one is a gel, and two are pills that we crush.  This is about 25ml of liquid.

For some reason I do not enjoy crushing these pills.  We use pliers to crush and grind the two pills up.  Of course it has to be the yellow pills that we crush and they stain everything they come in contact with.

The next two are Hayden's protein powders that we give him to help him gain weight.   We mix them with coconut milk.  Hayden does not seem to mind these.  They have a vanilla milkshake type taste to them.  We give these between lunch and dinner.  It is 60 ml of liquid total.

Around 5pm Hayden gets 5 ml of bionic silver.  Mixed and given the same way as earlier in the day

30 minutes after the bionic silver he gets his probiotics again.

At bedtime Hayden gets another puff of his flovent followed by brushing his teeth.  I think that is it :)  Some people may view this as extreme and maybe it is.  I want to make sure I am doing everything in my power to help my son heal and grow.