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Thursday, September 11, 2014

Hard Times

I generally only blog about the good times or exciting new things that Hayden and Ruby are doing.  I never want to discourage anyone or have people feel "sorry" for me.  The truth is I am feeling a bit discouraged myself right now.  Throughout Hayden's journey out of autism and healing there have been many ups and downs.  For the past 18 months we have pretty much only experience ups.  We might have an off day here or there but for the most part Hayden is doing well and gaining new skills.

Hayden started all day school 5 days a week almost 5 weeks ago.  This has hit him hard.  He is not doing well at school.  He is having outbursts, sensory seeking behaviors, not doing work, and being disrespectful to his teachers and peers.  I can't even put into words how hard it is for me to watch this behavior.  Hayden is autistic again and it is like a knife has been stabbed straight through my heart.  This is the third time in his life that I have watched my son regress and lose skills.  Each time is harder and more heartbreaking.

I am really not sure what to do.  I am working with his teachers on a new work plan for Hayden.  Starting next week Hayden is not going to go to school on Wednesdays and will stay home with me.  I also scheduled another round of hyperbaric oxygen therapy treatments the end of this month.  The only things that have changed for Hayden is school and we have updated paint and carpet in our home.

I am not seeing these behaviors at home like they are at school.  Hayden totally rocked his first martial arts class and was completely into it.

If you have an extra prayer, positive vibes, words of encouragement, or positive energy to send my little man and all the other children faced with autism I will take it.


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